National Human Genome Research Institute - Fact Sheets About Science, Ethics, Research Technique and Institute

Website including resources on policy and ethics. Includes a policy and legislation database for searching of federal and state laws and policy.


Type Website
CME Available No
Topic
Cost free
Note Website
Date of Resource

Genomic Competencies

Experts from the disciplines listed below have tagged this resource as fulfulling genomic competencies.

Pharmacist

  • Ethical, Legal and Social Implications (ELSI)
    • E1:   To understand the potential physical and/or psychosocial benefits, limitations and risk of genomic/pharmacogenomic information for individuals, family members and communities, especially with genomic/pharmacogenomic tests that may relate to predisposition to disease
    • E2:   To understand the increased liability that accompanies access to detailed genomic patient information and maintain confidentiality and security
    • E3:   To adopt a culturally sensitive and ethical approach to patient counseling regarding genomic/pharmacogenomic test results
    • E4:   To appreciate the cost, cost-effectiveness, and reimbursement by insurers relevant to genomic or pharmacogenomic tests and test interpretation, for patients and populations
    • E5:   To Identify the need to refer a patient to a genetic specialist or genetic counselor

Physician Assistant

  • Patient Care
    • 2:   Identify patients who would benefit from referral to genetics professionals
    • 3:   Distinguish between genetic screening and genetic testing
    • 4:   Incorporate genetic tests into patient management
    • 5:   Discuss the range of genetic and genomic-based approaches to the treatment of disease.
  • Medical Knowledge For Practice
    • 1:   Describe the cellular and molecular mechanisms underlying human inheritance.
    • 2:   Define the role of genetic variation in health and disease

Nurse

  • Nursing Assessment
    • NA-1:   Demonstrate understanding of relationship of genetics and genomics to health
      • NA1-K1:   Relationship of genetics and genomics to health
        • NA1-8:   Identify resources available to assist clients seeking genetic and genomic information or services including the types of services available.
      • NA1-K2:   Relationship of genetics and genomics to normal physiology and pathophysiology
        • NA1-8:   Identify resources available to assist clients seeking genetic and genomic information or services including the types of services available.
      • NA1-K3:   Basic principles of pharmacogenetics and pharmacogenomics
        • NA1-8:   Identify resources available to assist clients seeking genetic and genomic information or services including the types of services available.
      • NA1-K4:   Patterns of disease associated with single gene and multifactorial inheritance
        • NA1-8:   Identify resources available to assist clients seeking genetic and genomic information or services including the types of services available.
  • Identification
    • ID-2:   Identify credible, accurate, appropriate, and current genetic and genomic information
      • ID2-K1:   Resources for health care professionals and lay public
        • ID2-4:   Identify resources available to assist clients seeking genetic and genomic information or services including the types of services available.
      • ID2-K2:   Resources for referral within one's community
        • ID2-4:   Identify resources available to assist clients seeking genetic and genomic information or services including the types of services available.
      • ID2-K3:   Roles of genetic/genomic health care professionals
        • ID2-4:   Identify resources available to assist clients seeking genetic and genomic information or services including the types of services available.
      • ID2-K4:   Interprofessional resources
        • ID2-4:   Identify resources available to assist clients seeking genetic and genomic information or services including the types of services available.
    • ID-3:   Identify ethical, ethnic/ancestral, cultural, religious, legal, fiscal and societal issues
      • ID3-K1:   Cultural, ethnic, family values, traditions, health beliefs and religious perspectives
        • ID3-4:   Use ethical principles when deliberating genetic/genomic issues of decision-making, privacy, confidentiality, informed consent, disclosure, access, and personal impact.
        • ID3-6:   Describe the influence of insurance or other methods of reimbursement for services on access to genetic and genomic information and technologies.
      • ID3-K2:   The components of informed decision-making
        • ID3-4:   Use ethical principles when deliberating genetic/genomic issues of decision-making, privacy, confidentiality, informed consent, disclosure, access, and personal impact.
        • ID3-6:   Describe the influence of insurance or other methods of reimbursement for services on access to genetic and genomic information and technologies.
      • ID3-K3:   Sources of genetic information
        • ID3-4:   Use ethical principles when deliberating genetic/genomic issues of decision-making, privacy, confidentiality, informed consent, disclosure, access, and personal impact.
        • ID3-6:   Describe the influence of insurance or other methods of reimbursement for services on access to genetic and genomic information and technologies.
      • ID3-K4:   Capabilities and limitations of current genetic/genomic technologies
        • ID3-4:   Use ethical principles when deliberating genetic/genomic issues of decision-making, privacy, confidentiality, informed consent, disclosure, access, and personal impact.
        • ID3-6:   Describe the influence of insurance or other methods of reimbursement for services on access to genetic and genomic information and technologies.
      • ID3-K5:   Ethical issues related to genetic/genomic information and technology
        • ID3-4:   Use ethical principles when deliberating genetic/genomic issues of decision-making, privacy, confidentiality, informed consent, disclosure, access, and personal impact.
        • ID3-6:   Describe the influence of insurance or other methods of reimbursement for services on access to genetic and genomic information and technologies.
      • ID3-K6:   Psychosocial issues and impact of genetic/genomic information
        • ID3-4:   Use ethical principles when deliberating genetic/genomic issues of decision-making, privacy, confidentiality, informed consent, disclosure, access, and personal impact.
        • ID3-6:   Describe the influence of insurance or other methods of reimbursement for services on access to genetic and genomic information and technologies.
      • ID3-K7:   Current state, federal, and military policies
        • ID3-4:   Use ethical principles when deliberating genetic/genomic issues of decision-making, privacy, confidentiality, informed consent, disclosure, access, and personal impact.
        • ID3-6:   Describe the influence of insurance or other methods of reimbursement for services on access to genetic and genomic information and technologies.
    • ID-4:   Define issues that undermine the rights of all clients for autonomous, informed decision-making
      • ID4-K1:   Current state, federal, and military policies
        • ID4-1:   Identify respective genetic state legislation.
        • ID4-2:   Identify examples of misuse of genetic/genomic information and technology.
        • ID4-3:   Describe legal and social issues related to access and use of genetic information and technology.
      • ID4-K2:   The components of informed decision-making
        • ID4-1:   Identify respective genetic state legislation.
        • ID4-2:   Identify examples of misuse of genetic/genomic information and technology.
        • ID4-3:   Describe legal and social issues related to access and use of genetic information and technology.
      • ID4-K3:   Past and potential for misuse of genetic/genomic information and technology
        • ID4-1:   Identify respective genetic state legislation.
        • ID4-2:   Identify examples of misuse of genetic/genomic information and technology.
        • ID4-3:   Describe legal and social issues related to access and use of genetic information and technology.
      • ID4-K4:   Guidelines or policies regarding access
        • ID4-1:   Identify respective genetic state legislation.
        • ID4-2:   Identify examples of misuse of genetic/genomic information and technology.
        • ID4-3:   Describe legal and social issues related to access and use of genetic information and technology.
  • Provision of education, care and support
    • PECS-6:   Collaborate with insurance providers/payers to facilitate reimbursement for genetic and genomic health care
      • PECS6-K1:   Determinants of clinical utility of genetic/genomic tests
        • PECS6-1:   Identify strategies to facilitate reimbursement for genetic/genomic services and/or tests.
        • PECS6-2:   Describe other methods of payment for genetic/genomic health care services (i.e., laboratory indigent assistance programs).
      • PECS6-K2:   Economic impact of new genetic / genomic based therapies
        • PECS6-1:   Identify strategies to facilitate reimbursement for genetic/genomic services and/or tests.
        • PECS6-2:   Describe other methods of payment for genetic/genomic health care services (i.e., laboratory indigent assistance programs).
      • PECS6-K3:   Influence of predisposition gene variants, genetic disease/disorder on access to health
        • PECS6-1:   Identify strategies to facilitate reimbursement for genetic/genomic services and/or tests.
        • PECS6-2:   Describe other methods of payment for genetic/genomic health care services (i.e., laboratory indigent assistance programs).