National Information Resource on Ethics and Human Genetics

Website. Includes citations, some with abstracts or tables of contents, to literature on the ethical, legal, and social implications of genetic and genomic research and its applications from many disciplines and publication types including journals, newspapers, books, bills, laws, court decisions, reports, and audiovisuals.


Type Website
CME Available No
Topic
Cost Free
Note

Continuously updated.

Date of Resource

Genomic Competencies

Experts from the disciplines listed below have tagged this resource as fulfulling genomic competencies.

Physician Assistant

  • PROFESSIONALISM
    • 2:   Discuss financial, ethical, legal, and social issues related to genetic testing and recording of genetic information

Nurse

  • Nursing Assessment
    • NA-7:   Assess client's knowledge, perceptions, and responses
      • NA7-K1:   Cultural, social, ethnic and religious perspectives
        • NA7-1:   Demonstrate the ability to assess clients cultural, religious and ethnic perspectives with regards to genetics and genomics.
        • NA7-12:   Demonstrate assessment of social and psychological responses to genetic/genomic information.
      • NA7-K2:   Social and psychological implications of accessing genetic services and information
        • NA7-1:   Demonstrate the ability to assess clients cultural, religious and ethnic perspectives with regards to genetics and genomics.
        • NA7-12:   Demonstrate assessment of social and psychological responses to genetic/genomic information.
      • NA7-K3:   Ethical and legal issues
        • NA7-1:   Demonstrate the ability to assess clients cultural, religious and ethnic perspectives with regards to genetics and genomics.
        • NA7-12:   Demonstrate assessment of social and psychological responses to genetic/genomic information.
      • NA7-K4:   Principles of autonomous decisionmaking in genetic counseling
        • NA7-1:   Demonstrate the ability to assess clients cultural, religious and ethnic perspectives with regards to genetics and genomics.
        • NA7-12:   Demonstrate assessment of social and psychological responses to genetic/genomic information.
      • NA7-K5:   Principles of client genetic/genomic education and counseling
        • NA7-1:   Demonstrate the ability to assess clients cultural, religious and ethnic perspectives with regards to genetics and genomics.
        • NA7-12:   Demonstrate assessment of social and psychological responses to genetic/genomic information.
  • Identification
    • ID-3:   Identify ethical, ethnic/ancestral, cultural, religious, legal, fiscal and societal issues
      • ID3-K1:   Cultural, ethnic, family values, traditions, health beliefs and religious perspectives
        • ID3-4:   Use ethical principles when deliberating genetic/genomic issues of decision-making, privacy, confidentiality, informed consent, disclosure, access, and personal impact.
        • ID3-6:   Describe the influence of insurance or other methods of reimbursement for services on access to genetic and genomic information and technologies.
      • ID3-K2:   The components of informed decision-making
        • ID3-4:   Use ethical principles when deliberating genetic/genomic issues of decision-making, privacy, confidentiality, informed consent, disclosure, access, and personal impact.
        • ID3-6:   Describe the influence of insurance or other methods of reimbursement for services on access to genetic and genomic information and technologies.
      • ID3-K3:   Sources of genetic information
        • ID3-4:   Use ethical principles when deliberating genetic/genomic issues of decision-making, privacy, confidentiality, informed consent, disclosure, access, and personal impact.
        • ID3-6:   Describe the influence of insurance or other methods of reimbursement for services on access to genetic and genomic information and technologies.
      • ID3-K4:   Capabilities and limitations of current genetic/genomic technologies
        • ID3-4:   Use ethical principles when deliberating genetic/genomic issues of decision-making, privacy, confidentiality, informed consent, disclosure, access, and personal impact.
        • ID3-6:   Describe the influence of insurance or other methods of reimbursement for services on access to genetic and genomic information and technologies.
      • ID3-K5:   Ethical issues related to genetic/genomic information and technology
        • ID3-4:   Use ethical principles when deliberating genetic/genomic issues of decision-making, privacy, confidentiality, informed consent, disclosure, access, and personal impact.
        • ID3-6:   Describe the influence of insurance or other methods of reimbursement for services on access to genetic and genomic information and technologies.
      • ID3-K6:   Psychosocial issues and impact of genetic/genomic information
        • ID3-4:   Use ethical principles when deliberating genetic/genomic issues of decision-making, privacy, confidentiality, informed consent, disclosure, access, and personal impact.
        • ID3-6:   Describe the influence of insurance or other methods of reimbursement for services on access to genetic and genomic information and technologies.
      • ID3-K7:   Current state, federal, and military policies
        • ID3-4:   Use ethical principles when deliberating genetic/genomic issues of decision-making, privacy, confidentiality, informed consent, disclosure, access, and personal impact.
        • ID3-6:   Describe the influence of insurance or other methods of reimbursement for services on access to genetic and genomic information and technologies.
    • ID-4:   Define issues that undermine the rights of all clients for autonomous, informed decision-making
      • ID4-K1:   Current state, federal, and military policies
        • ID4-2:   Identify examples of misuse of genetic/genomic information and technology.
        • ID4-3:   Describe legal and social issues related to access and use of genetic information and technology.
        • ID4-4:   Access interprofessional ethical resources when trying to resolve ethical dilemmas.
      • ID4-K2:   The components of informed decision-making
        • ID4-2:   Identify examples of misuse of genetic/genomic information and technology.
        • ID4-3:   Describe legal and social issues related to access and use of genetic information and technology.
        • ID4-4:   Access interprofessional ethical resources when trying to resolve ethical dilemmas.
      • ID4-K3:   Past and potential for misuse of genetic/genomic information and technology
        • ID4-2:   Identify examples of misuse of genetic/genomic information and technology.
        • ID4-3:   Describe legal and social issues related to access and use of genetic information and technology.
        • ID4-4:   Access interprofessional ethical resources when trying to resolve ethical dilemmas.
      • ID4-K4:   Guidelines or policies regarding access
        • ID4-2:   Identify examples of misuse of genetic/genomic information and technology.
        • ID4-3:   Describe legal and social issues related to access and use of genetic information and technology.
        • ID4-4:   Access interprofessional ethical resources when trying to resolve ethical dilemmas.