The Genetic Information Nondiscrimination Act (GINA)

This web resource is a discussion guide for clinicians. It includes background documents, a guide suggesting how and when to talk about GINA with patients, a teaching slide set, and case studies that describe how the law works in a variety of real-world, clinical settings.


This resource was developed by the National Coalition for Health Professional Education in Genetics (NCHPEG), Genetic Alliance, and Johns Hopkins University, and is now hosted by The Jackson Laboratory.


Type Website
CME Available No
Topic
Cost Free
Note Website with document available

Genomic Competencies

Experts from the disciplines listed below have tagged this resource as fulfulling genomic competencies.

Genetic Counselor

  • Genetics Expertise and Analysis
    • 2:   Integrate knowledge of psychosocial aspects of conditions with a genetic component to promote client well-being.
      • 2a:   Demonstrate an understanding of psychosocial, ethical, and legal issues related to genetic counseling encounters.
  • Education
    • 15:   Write concise and understandable clinical and scientific information for audiences of varying educational backgrounds.
      • 15a:   Develop written educational materials tailored to the intended audience.
  • Professional Development & Practice
    • 17:   Act in accordance with the ethical, legal and philosophical principles and values of the genetic counseling profession and the policies of one's institution or organization.
      • 17a:   Follow the guidance of the National Society of Genetic Counselors Code of Ethics.
      • 17b:   Recognize and respond to ethical and moral dilemmas arising in genetic counseling practice and seek outside consultation when needed.
      • 17c:   Identify and utilize factors that promote client autonomy
      • 17d:   Ascertain and comply with current professional credentialing requirements, at the institutional, state, regional and national level.
      • 17e:   Recognize and acknowledge situations that may result in a real or perceived conflict of interest.